Blar i ODA Open Digital Archive på forfatter "Albertini Früh, Elena"
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"Avoir un enfant différent dans un pays où on est différent". Une étude des familles immigrées en Norvège
Albertini Früh, Elena; Rachedi, Zineb; Lidén, Hilde (Enfances Familles Générations;Numéro 28, 2017, Journal article; Peer reviewed, 2017-12-22)Cadre de la recherche : En Norvège, vivre avec un enfant ayant des problèmes de santé est une réalité pour de nombreux parents et demande une adaptation de toute la famille ; cela peut être d’autant plus problématique pour ... -
The circumstances of migrant families raising children with disabilities in five European countries: Updating knowledge and pursuing new research
Piérart, Geneviève; Arneton, Mélissa; Gulfi, Alida; Albertini Früh, Elena; Lidén, Hilde; Makharadze, Tamar; Rekhviashvili, Eliso; Dainese, Roberto (Alter - European Journal of Disability Research;Volume 14, Issue 4, Journal article; Peer reviewed, 2020-07-11)In 2017, specialists in several fields (health, education, and social work) from five European countries (France, Georgia, Italy, Norway, and Switzerland) established a network to jointly pursue studies on migration and ... -
Er koordinatorordningen for familier med funksjonshemmede barn bærekraftig?
Albertini Früh, Elena; Østerud, Kaja Larsen; Vedeler, Janikke Solstad; Anvik, Cecilie Høj; Jacobsen, Sigurd Eid (Peer reviewed; Journal article, 2023)Bakgrunn:Norske kommuner er pålagt å tilby koordinator for å sikre kontinuitet og samhandling i oppfølging avfamilier med barn som har behov for langvarige og koordinerte velferdstjenester. I artikkelen utforsker vi ... -
How do immigrant parents of children with complex health needs manage to cope in their daily lives?
Kvarme, Lisbeth Gravdal; Albertini Früh, Elena; Lidén, Hilde (Journal article; Peer reviewed, 2017)Daily life with children who have complex health needs can be stressful for parents. Immigrant parents are vulnerable to stress because they may lack language skills and knowledge about the health care system and have ... -
Innvandrerfamilier med barn med spesielle behov – mødres tilknytning til arbeidslivet
Albertini Früh, Elena; Lidén, Hilde; Gardsjord, Ragnhild; Aden, Petra; Kvarme, Lisbeth Gravdal (Journal article; Peer reviewed, 2016)Artikkelen belyser hvordan mødre med innvandrerbakgrunn som har barn med spesielle behov, reflekterer over egne forventninger og muligheter til det å være yrkesaktive. Analysen er basert på kvalitative intervjuer med i ... -
Making room for life and death at the same time – a qualitative study of health and social care professionals’ understanding and use of the concept of paediatric palliative care
Winger, Anette; Albertini Früh, Elena; Holmen, Heidi; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Riiser, Kirsti; Steindal, Simen Alexander (BMC Palliative Care;21, Article number: 50 (2022), Peer reviewed; Journal article, 2022-04-11)Background: The concept of pediatric palliative care (PPC) is applied diferently within the healthcare system and among healthcare professionals (HCPs). To our knowledge, no studies have investigated how multidisciplinary ... -
On duty all the time: Health and quality of life among immigrant parents caring for a child with complex health needs
Kvarme, Lisbeth Gravdal; Albertini Früh, Elena; Brekke, Idunn; Gardsjord, Ragnhild; Halvorsrud, Liv; Lidén, Hilde (Journal article; Peer reviewed, 2016)Aims and objectives: To provide knowledge about how immigrant parents of children with complex health needs manage their family lives and how this affects their own health and quality of life. Background: Caregivers ... -
Participation sociale de mères immigrées avec des enfants ayant des besoins spéciaux et politiques éducatives. Une étude qualitative norvégienne auprès de parents immigrés
Albertini Früh, Elena; Kvarme, Lisbeth Gravdal; Lidén, Hilde; Arneton, Mélissa (Revue Éducation Comparée;N° 22, Journal article; Peer reviewed, 2020)L’objectif de cette étude est d’explorer les attentes et les conditions liées à la vie familiale et à la vie professionnelle de mères d’enfants ayant des besoins spéciaux ainsi que l’offre éducative proposée à ces ... -
Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept
Riiser, Kirsti; Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Albertini Früh, Elena (Peer reviewed; Journal article, 2022)Background By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate ... -
Students’ top 10 priorities of research uncertainties on students’ sleep: a pragmatic James Lind Alliance approach
Holmen, Heidi; Riiser, Kirsti; Løyland, Borghild; Sandbekken, Ida Hellum; Almendingen, Kari; Andenæs, Randi; Bjørnnes, Ann Kristin; Holmberg Fagerlund, Bettina; Albertini Früh, Elena; Helseth, Sølvi; Kvarme, Lisbeth Gravdal; Leegaard, Marit; Misvær, Nina; Pallesen, Ståle; Rasalingam, Anurajee; Ravn, Ingrid Helen; Ribu, Lis; Rostad, Hanne Marie; Nilsen, Bente; Sæterstrand, Torill Margaret; Torbjørnsen, Astrid; Utne, Inger; Valeberg, Berit Taraldsen; Valla, Lisbeth; Winger, Anette; Grov, Ellen Karine (BMJ Open;Volume 11, Issue 1, Journal article; Peer reviewed, 2021-01-26)Objectives: Inspired by the James Lind Alliance (JLA) user involvement approach, the aim of the present study was to identify the top 10 uncertainties for sleep research raised by students in higher education, and to discuss ... -
Tillit til velferdstjenester? Innvandrerforeldre med barn med spesielle behovs møter med hjelpeapparatet
Albertini Früh, Elena; Lidén, Hilde; Kvarme, Lisbeth Gravdal (Journal article; Peer reviewed, 2017)Artikkelen belyser hvordan foreldre med innvandrerbakgrunn beskriver tillit til velferdstjenester når de har et barn med spesielle behov, og hvordan dette innvirker på deres tilhørighet i samfunnet. Studien består av 27 ... -
Ungdommers erfaring med nyoppdaget diabetes 1. En kvalitativ studie
Albertini Früh, Elena; Misvær, Nina; Helseth, Sølvi (Nordisk sygeplejeforskning;Årgang 11, nr. 4-2021, Peer reviewed; Journal article, 2021-11-25)Bakgrunn: Å få en kronisk sykdom som diabetes er utfordrende og stiller krav til ungdommer som rammes. Eksempler er svingende blodsukkerverdier og psykososiale utfordringer som kan påvirke etterfølgelse av behandlingen. ... -
What is Known About Students and Sleep: Systematic Review and Evidence Map
Bjørnnes, Ann Kristin; Torbjørnsen, Astrid; Valeberg, Berit Taraldsen; Sparboe-Nilsen, Bente; Sandbekken, Ida Hellum; Almendingen, Kari; Leegaard, Marit; Ravn, Ingrid Helen; Sæterstrand, Torill Margaret; Løyland, Borghild; Kvarme, Lisbeth Gravdal; Holmberg Fagerlund, Bettina; Valla, Lisbeth; Misvær, Nina; Riiser, Kirsti; Utne, Inger; Rostad, Hanne Marie; Winger, Anette; Albertini Früh, Elena; Holmen, Heidi; Ribu, Lis; Helseth, Sølvi; Grov, Ellen Karine (Sage Open;Volume: 11, issue: 3, Peer reviewed; Journal article, 2021-07-01)Higher education students are considered to belong to a population susceptible to poor sleep health; however, there is a lack of broader evidence reviews. This systematic review aims to map out and categorize the existing ...